Help improve understanding about living with sickle cell disease by sharing:

- what symptoms you experience 

- your day-to-day quality of life

- any experiences of discrimination

- financial (out-of-pocket) costs to you and your family

Help improve understanding about living with

sickle cell disease by sharing:

  • what symptoms you experience
  • your day-to-day quality of life
  • any experiences of discrimination
  • financial (out-of-pocket) costs to you and your family

Help improve understanding about living with

sickle cell disease by sharing:

- what symptoms you experience 

- your day-to-day quality of life

- any experiences of discrimination

- financial (out-of-pocket) costs to you and your family

Share your story and real-life experiences living with sickle cell disease

Take survey

Share your story and real-life experiences living with sickle cell disease

Take survey

Why take part?

You will improve our understanding about sickle cell disease and contribute to research


You will be compensated for your study-related time


For more information, please read the participant information sheet

Can I take part?

You are 18 years or older and live with sickle cell disease


You are a caregiver of an adolescent aged 12 to 17 years who lives with sickle cell disease


You are able to provide informed consent

How do I start?

To register interest, please respond to some brief questions about yourself


You will have the right to leave the survey at any time


Your information will be treated in accordance with applicable privacy laws

Why take part?

You will improve our understanding about sickle cell disease and contribute to research


You will be compensated for your study-related time


For more information, please read the participant information sheet

Can I take part?

You are 18 years or older and live with sickle cell disease


You are a caregiver of an adolescent aged 12 to 17 years who lives with sickle cell disease


You are able to provide informed consent

How do I start?

To register interest, please respond to some brief questions about yourself


You will have the right to leave the survey at any time


Your information will be treated in accordance with applicable privacy laws

How will my responses be used?

The results of this study will be published in scientific journals and aim to inform health decision-making in the future to improve standards of care in sickle cell disease. Information generated may be presented to the public and used for educational purposes.


We plan is to share findings from our study at the 64th American Society of Hematology Annual Meeting and Exposition 2022 (ASH 2022) which will take place in December 2022 in New Orleans, United States.


Data confidentiality will be maintained and any information that could identify you (like your name, gender or age) will be removed and will not be used in any publication or presentation.

Any Questions?

If you have any questions or would like more information, please contact: support@qcmedica.com



Take survey